About me

Brain tumour charity ph

At the age of 27 I was diagnosed with a Pontine Glioma brain tumour, an inoperable tumour due to its location in the Pons region of the Brain stem. I am told my tumour type is so rare that it will not be found on the internet. I am officially an enigma! My tumour was originally benign and remained dormant and unchanged, since treatment, for 8 years. Sadly it has reared it’s ugly head in recent months with various health consequences and there is no obvious cure. I continue on my mission to find a successful treatment for this horrible disease.

My aim is to communicate my experiences, further to being treated with radiotherapy and now mild chemotherapy, and to discuss the challenges faced by brain tumour sufferers after treatment, e.g. access to employment, physical and mental health, etc. I hope to bring some humour on the way, after all, positive thinking is always recommended, but of course there is always the prospect that what I think is hilarious isn’t really all that funny, I’m not a professional comedian let’s face it, so I apologise in advance if my sense of what is funny basically well …isn’t.

I would also like to highlight the importance of raising funds in order to further investigative research into potential cures.

If you can afford to donate to The Brain Tumour Charity, please do so using the below link.